Sunday, October 31, 2010
I recorded this video of Madison last night. She was dancing a lot more before I pulled the camera out. She got a little shy. She was having a blast!
We did have a first today though. I had to call Poison Control! They were so nice. Madison got a hold of some of my hair product and twisted the top off and licked some. Luckily, she didn't get enough to harm her. Thank goodness! I got must of it off of her tongue.
Friday, October 29, 2010
We are still trying to decide if we are going to take her out tomorrow for Halloween. We normally just take her to a few close friend's houses and then go get a bite to eat. I will post pictures of her in her pumpkin outfit either way!
Thursday, October 28, 2010
Madison had a great time this morning at a play date at Madeline Simmons' house with several other kids. It was a new environment for her to cruise around in. I am pretty sure Madeline and Madison are going to be very good friends. Madeline couldn't keep her eyes off of Madison's walker! As I was getting ready to load up the car, Madison was playing with one of Madeline's toys. Summer, being the sweet Mama she is, let Madison bring the toy home with her since she didn't want to give it up. Needless to say, Madison fell asleep with that toy for her nap and her bedtime! I keep trying to pull it away from her but she wakes up. Once I get it I need to hide it so we can give it back it Madeline.
Today was Madison's last day of therapy for the winter months. Shane and I have made the decision to take a leave of absence and keep her inside this winter. We are going to miss our Peds Plus family so much!
This will also be the first year that we stay home for Thanksgiving and Christmas. We normally go to Dothan every year but keeping Madison healthy is more important.
Madison and I have quite a bit of errands we have to run tomorrow. Why? Amy is flying in on Tuesday and we can not wait!!!!!!!!! She was just here two and half weeks ago but I miss her terribly. I hate not being able to see the cute baby bump everyday. I can't even think about how hard this going to be when the baby gets here.
Wednesday, October 27, 2010
This morning when Madison woke up I noticed a lot of drainage coming from her left ear. I knew this meant something was going on because her ear was bright red also. I called the pediatrician's office and took her in this afternoon.
Our pediatrician looked at Madison's ear and sure enough she has an ear infection. She believes her ear drum ruptured which is why the drainage looked a little bloody. We were so surprised she hasn't acted like she is in any pain. She is still a very happy little girl. Hopefully, the ear drops will kick in before it gets worse.
We are looking forward to a play date in the morning. Should be lots of fun!!
She started getting fussy shortly after the bath though. Which is why I couldn't post yesterday. She had been whiny pretty much all day. I just couldn't make her happy. Well, at 7:45 we laid her in our bed and turned on cartoons and she got relaxed. I kept going in to check on her and she still wasn't asleep. I went in again at 8:45 to check on her and as I started walking out of the bedroom she started crying. I went back and laid down with her and she was fine. She was talking, laughing, kicking and had no intentions of going to bed.
Finally, around 10:15 I got up with her and gave her a bottle. She has been sleeping in our bed now for about 4 months. We got back in the bed and tried to get her settled down. She talked up until around 1:45! Poor Shane was so tired this morning. Madison woke up at 8:00 ready to play.
Hopefully tonight will be better! Wish us luck!
Monday, October 25, 2010
Other than the bug bites, Madison had a good day. Dad watched her for me this morning while I went to the doctor. When I got to their house to pick her up he had moved their kitchen table so Madison had plenty of room to roam around in with her walker. She has really gotten in to kicking soccer balls while in her walker. Dad had taken two cans of vegetables and put them on the kitchen floor to make a goal and Madison would kick the ball in between the cans. She can always count on having a great time when she is at MiMi and PawPaw's house. After all, that is what grandparents do.
Now, Shane and Madison are in our bed and he is trying to get her to sleep. I think it might be awhile though because I hear a lot of giggles coming from both of them. Music to my hears!!
Sunday, October 24, 2010
I had to post this picture of Madison I took tonight as I was getting ready to put her Pjs on. She was smiling so big I couldn't resist snapping pictures.
Madison had a fun afternoon at her grandparents house. We had to take Shane's mom to the hospital this afternoon because of stomach pains so mom and dad kept Madison for us. Luckily, Shane's mom is okay and Madison had a blast at MiMi and PawPaw's house. Shane was even able to go hunting this afternoon!
When Shane got home, he was showing me some pictures of some deer that he saw today. We were trying to figure something out with his phone and I got my phone and tried to figure it out too. Before we knew it, Madison had gone to her toy chest and picked up her play cell phone and acted like she was doing the same thing. We got a good laugh out of it.
Thank you Lord for blessing us with another day to enjoy our precious daughter!!
Saturday, October 23, 2010
Friday, October 22, 2010
We got home from Birmingham last night about 8:00. We were so glad to be home, especially Madison. She slept 13 hours last night! We were very pleased with all the check ups we had this week. We will be going back the first week in April and do it all again.
I made a video tonight that I have been trying to post. It isn't allowing me to upload the video. I will have to try again tomorrow.
Thank you for all the prayers for our family this week.
Wednesday, October 20, 2010
Monday, October 18, 2010
Well, we made it to Birmingham! We left the house at 10:45 and pulled in to the hotel at 5:15. We stopped in Dothan and had lunch with Big Mama. She cooked us a great meal. After we left Big Mama's house Madison feel asleep and slept until we were about 30 minutes out from Birmingham. We had dinner at the hotel and came back up to the room so we could watch Dancing With the Stars!!
We are getting up early in the morning. We will see three doctors tomorrow. I will post all the updates from those appointments tomorrow tonight.
The picture is taken in the hotel lobby. We were eating dinner and Madison was playing with the paper plates. She had just finished eating.
Sunday, October 17, 2010
Saturday, October 16, 2010
Miss Madison has had a very busy day. We got up this morning and headed out to Pier Park with mom and dad. We had lunch at Five Guys. Madison loved this because she is such a people watcher like me. She was really enjoying watching the madness of that restaurant.
I needed to get her some fall clothes, especially for the Birmingham trip. We are going on the first year of Madison not changing sizes in clothes. She has been in 18 months for a full year now. This is pretty normal though with her disease. She has pretty much stopped growing.
After all that shopping she got a good nap and slept until 6:00! Once I woke her up she had the giggles until I put her back down for bed. She has such a happy soul. Madison does miss her Aunt Amy though. She has been walking around the house calling and looking for her. Lucky for us she will be back in 3 weeks!! We can't wait!!
Friday, October 15, 2010
I was in on a little secret that Paul and Amy were coming in to town on Tuesday afternoon. The story I was told was that Paul had to do some work in Destin and Amy and Scout were coming along for the ride. The plan was for them to show up at our house for dinner on Tuesday to surprise Mom and Dad. However, we were all in for a huge surprise when I opened the door to Amy holding a bouquet of pink and blue balloons. It didn't occur to me what was going on until Amy asked Madison if she wanted to be a big cousin!! Baby Cristina will be making his or her arrival around April 17. We could not be happier about the newest addition to the family. We all know Madison is going to be a great big cousin.
Wednesday, October 13, 2010
I had to post this picture of Madison and Madeline Simmons playing today. I was so glad we were able to stop by and visit with them, even it was for just a little bit. These two were so cute together! I hope we can get them together again soon!
Sorry my posts are a little shorter than normal.
Tuesday, October 12, 2010
Madison has had such a great day. We have been cleaning house most of the day. She is so funny because as I am dusting the house, she has to have a rag just like mine and she will walk behind me and act like she is dusting too. I should have gotten a picture of that today but it complete slipped my mind.
Thank you Lord for blessing us with yet another day to make precious memories with Madison.
Monday, October 11, 2010
Sunday, October 10, 2010
Friday, October 8, 2010
We have really been working on Madison with her manners. Before, anytime she wanted something, she would do this loud grunt and point to what she wanted. It was after a lot of consistency, but we finally having her saying "please" when she wants something and "thank you" after she receives it. The dilemma is, she thinks that because she says "please" she should be able to get what ever it is she may want.
Thursday, October 7, 2010
The picture is from today but the story is from yesterday. I wanted to post this story yesterday but didn't have time.
Every Wednesday, Madison has Early Intervention therapy, and her therapist comes up to the house and works with her for about a hour. Yesterday, she was showing Madison an alphabet book. Each page had a picture of the something beginning with that letter in the alphabet. When they got to "D", there was a picture of a dog. The therapist asked Madison what it was and Madison looked at the picture and said "Scout!" Amy and Paul have a dog named Scout and that is the only dog she has really ever been around. I thought it was too cute not to share.
Wednesday, October 6, 2010
Tuesday, October 5, 2010
I took this picture this afternoon as the sun was starting to go down. It was so funny to watch Madison's face as she watched her shadow on the wall move. She didn't know weather she should laugh or cry!
I used to love this time of year as the weather turned cool. Now, I find myself sinking into this depression as fall is here and winter is quickly approaching. Winters are so brutal on I-Cell children. Last year was the first fall we went through with the knowledge of what Madison had. I had just joined the support group on facebook. I was not emotionally prepared for what all happened last year. In the small I-cell community we lost, I believe, 6 children, in a 4 month time frame. Three of those children I hadn't gotten to be pretty close to. The reality of what we are up against really hit home.
Today, I had myself a pity party. I was asking God why we had to go through this? Why did he have to choose my daughter to have this disease. I hate that Madison isn't able to go and do like healthy children can. It breaks my heart for her. After voicing my anger to God, I finished praying. Shortly after that, I had such a peace in my heart. Why not us? As hard as this journey is, I thank the Lord that Madison was born into our family. It breaks my heart even more to know that she could have been born into a family who would not have cared for or loved her the way we do.
I am constantly reminded of this when I go out and see parents who talk horribly to their children and just don't care for them AT ALL. That is why Madison was born into our family. I would not trade anything for the joy and happiness she has brought to us. Not only us, as our family, but friends and people whom we have never met. As a Christian, I just wish I could touch as many people as our precious Madison has.
I know I will have these pity parties every now and then, and that's okay. I know that the Lord hears my cries. I know that Madison will one day be healed of this disease, whether it be on earth or heaven, and I will always praise his name because I know His will was done.
Monday, October 4, 2010
Sunday, October 3, 2010
I wanted to post this picture of Madison and mom that I took today at church. Mom was honored this morning with the Presbyterian Woman of the Year award. I am so proud of her and so blessed to have her as mom.
Mom does do much for us and I know we do not thank her enough. I know that this journey we are going down would be so much harder if we didn't have mom and dad to help us. I am truly grateful for all that they do for us.
Madison has had a great day. We all went to church this morning and then went out to lunch with mom and dad. We got our Sunday afternoon nap in. After that, it was time to tackle Madison's closet and dresser drawer. I hate doing this! I did shed a some tears when I opened a box of old clothes and it contained her preemie and newborn clothes. It was so hard to remember how small Madison was. Where did the past 3 years ago? I can't believe how fast time is flying by. I am so not ready for this.
I was cleaning out one of Madison's drawer that had just blankets in it. She came up behind me in her walker and pointed to the blanket, looked at me, and said "blanket." I am so happy to hear her talking so much. She is saying about 2-3 new words a day right now.
One last story....tonight for dinner I cooked pig-in-the-blankets and I had the hot dogs boiling on the stove. Madison was in the kitchen with me. The water started boiling over the pan and started smoking and Madison pointed up to the stove and said "uh oh." Shane and I both started laughing. I love making precious memories with my precious family!
Saturday, October 2, 2010
We haven't had a very exciting day today. Shane had to go up to his Mama's house and mow her yard. Madison and I stayed home and cleaned the house.
Friday, October 1, 2010
I had to post this picture of Madison giving her "serious look" to me tonight when I asked her if she was ready to go to bed. We can't help but laugh every time she does this.
This has been such a busy day for us. Madison woke up before 11:00 this morning. YAY!! We had some errands we needed to run. I needed to go to the tire store, the bank, Walmart, the grocery store and have lunch with dad. We had lunch with dad after Walmart and before the grocery store. We picked him up and he rode with us.
At lunch, dad decided that he would go with me and push Madison in the grocery cart for me....BIG MISTAKE!! When I go to the grocery store I am on a mission to get in and get out as quickly as possible. Dad, however, takes his sweet time...getting a cup of coffee, stopping at the pharmacy to say hello, etc, etc. I am walking way ahead of him getting stuff to put in the cart telling him to stay behind me. He has to show Madison everything in the grocery store!! It was cute but it wasn't.
After we dropped dad off Madison feel asleep in the car and got a good nap in before daddy got home. The biggest news is that Madison as started talking up a storm this week! With her disease the children have a very limited vocabulary but each child is different so it is hard to tell how many words they will say. Right now, she can say about 15-20 words. Today, she added more to that number and said "boat," "pool," "thank you," "aww man" and "yuck." She dropped a toy tonight and since she can't bend down to pick it up, she points to it and says "please." After Shane handed her the toy, she looked up at him and said "thank you" and smiled so big. Shane and I both started praising her. Then she went on and on saying it.
The moment I am most proud of though is this. Right now, Madison can't say hardly any sentences. The only sentence she says is "I did it". Tonight I took her outside because she loves to walk around the pool at night. I had the pool light on for her and took her out and she pointed to the pool and looked at me and said "pool." I said "Yes baby. That's the pool." Then she looked back at me and said "I wanna du in du pool." I just stared at her in complete shock and then ran inside with her to tell Shane. Of course she wouldn't say it again. All she would say is "da pool." It's moments like that I wish I had the video camera handy.
Once again Lord, I thank you for giving me another day to enjoy our precious daughter and pray that I have many, many more of them.