Well I have had a sick feeling to my stomach all afternoon. With the weather being quite a bit warmer than the past few days, I took Madison out for a little bit. Madison only got out at one place. Shane and I decided to go to Smitty's today for lunch with Madison. Since we went kind of late in the afternoon they were not very busy. We sat in the corner and didn't really have people around us. When I have Madison out with me I hear every cough and sneeze and I just cringe. Madison is certainly not showing any signs of getting sick and I hope and pray it stays that way.
This video just goes to show how good she is feeling. She has been running back and forth in the kitchen most of the night. I took some video of her and wanted to share it with you all. I hope you enjoy it.
Thursday, December 30, 2010
Wednesday, December 29, 2010
Day 66
Madison is tuckered out after a wonderful day of playing with Mimi and Papa. Shane closed the tire store this week and has been hunting most of the week. I told him I was going to go with him one day during the week and picked today to go. I didn't want to get up at 3:30 in the morning so I went with him on the afternoon hunt instead. Mom came over to the house and kept Madison while I was gone, and then dad came over later on this afternoon so they could all eat dinner together. Madison had blast. She was needing some time with just her and her Mimi.
When we got home tonight around 7:30 I could tell she was starting to get tired. Mom and dad hadn't even been gone a hour and she was out. I rocked her to sleep in the recliner and was able to give her a breathing treatment. She didn't even wake up. I did have to change her diaper before I put her in our bed and that caused her to become wide awake. I guess she got her little power nap and is ready to go again. Off I go to try to get her to sleep. Wish me luck!
When we got home tonight around 7:30 I could tell she was starting to get tired. Mom and dad hadn't even been gone a hour and she was out. I rocked her to sleep in the recliner and was able to give her a breathing treatment. She didn't even wake up. I did have to change her diaper before I put her in our bed and that caused her to become wide awake. I guess she got her little power nap and is ready to go again. Off I go to try to get her to sleep. Wish me luck!
Madison not wanting to go to sleep.
Tuesday, December 28, 2010
Day 65
Madison and I have had so much fun today! With the week before Christmas and all the chaos, Madison and I haven't had much time together just the two of us. We have gotten so used to this and have our routine in the morning. She gets up drinks a bottle, gets a bath, play time, eats lunch, takes a nap, play time again, eats dinner, play time again with daddy, then we go to bed. The past several days we haven't had our regular play time. She has had it but it has been with either Amy, Mom, Dad or Shane. I have missed that time so much. We made up for it today. Luckily, she didn't take as long of nap as she normally does so we had a lot of time to play this afternoon.
Dad came over to the house and had lunch with us. Some friends of our had gotten him one of those Hallmark books that you can record yourself reading it. Well dad has been trying to record himself reading it for several days now. He brought it over with him and I was cracking up listening to him. First off, he didn't have his glasses which he really needed. Then he would get so dramatic when he was reading that it would beep before he could finish the page. He gave up and said he was going to try again another day. Needless to say, I got a good laugh out of it. I can always count on dad to make me laugh!
Dad came over to the house and had lunch with us. Some friends of our had gotten him one of those Hallmark books that you can record yourself reading it. Well dad has been trying to record himself reading it for several days now. He brought it over with him and I was cracking up listening to him. First off, he didn't have his glasses which he really needed. Then he would get so dramatic when he was reading that it would beep before he could finish the page. He gave up and said he was going to try again another day. Needless to say, I got a good laugh out of it. I can always count on dad to make me laugh!
Sunday, December 26, 2010
Day 64
We had a wonderful Christmas Eve and Christmas Day. It just doesn't seem the same without Amy and Paul here. I missed them terribly. This holiday season has been pretty rough for me. I remember before we had Madison, I always looked forward to carrying on our holiday family traditions with her. We always have so much fun when we get together with our extended family and I wanted my children to grow up with the same joy it brought me. Some of my fondest memories are with all my cousins on Christmas Day and Christmas night.
With Madison's disease all of our traditions have changed and we don't get to see everyone like we did around the holidays. Madison's health is more important but it is still hard. This is the first Christmas Eve that we did not attend our candle light service at our church. That was when it really it me that you really realize what we are up against. I know it is hard on mom and dad as well. They have changed their traditions so they can be with us during the holidays so they miss out as well. We do still make the best of the situation and make sure we make wonderful memories with Madison. That is what is most important to us. Hopefully, Madison will continue to stay healthy.
We have been amazed by how active she has gotten in the past months. Anytime she gets a cold, it sets her back. I am certain we have made the right choice by keeping her in this winter. However, summer can not get here fast enough. I miss taking her to the grocery store, going out to eat, going to church, having play dates, etc., etc., etc.
Here are some pictures and a video from Christmas Eve and Christmas Day. I also included some pictures from when Amy and Paul were here.
I hope everyone had a Merry Christmas. I can not say thank you enough for the prayers that many of you lift up for our family daily. I am so thankful for the faith I have in knowing that God hears all of our cries but it will be His will that is going to be done. Love you all!
With Madison's disease all of our traditions have changed and we don't get to see everyone like we did around the holidays. Madison's health is more important but it is still hard. This is the first Christmas Eve that we did not attend our candle light service at our church. That was when it really it me that you really realize what we are up against. I know it is hard on mom and dad as well. They have changed their traditions so they can be with us during the holidays so they miss out as well. We do still make the best of the situation and make sure we make wonderful memories with Madison. That is what is most important to us. Hopefully, Madison will continue to stay healthy.
We have been amazed by how active she has gotten in the past months. Anytime she gets a cold, it sets her back. I am certain we have made the right choice by keeping her in this winter. However, summer can not get here fast enough. I miss taking her to the grocery store, going out to eat, going to church, having play dates, etc., etc., etc.
Here are some pictures and a video from Christmas Eve and Christmas Day. I also included some pictures from when Amy and Paul were here.
Drinking a bottle while Mommy cooks Christmas Eve dinner.
Patiently waiting for MiMi Papa to come over after church. 
They're here!!
MiMi and Papa let Madison open a gift on Christmas Eve.
Christmas Day. MiMi helping Madison open her present.
Madison watching Amy and Paul open their presents.
Amy and Paul opening their presents.
Madison being her happy little self.
Amy and Paul helping Madison open her present from Grandma Jackie.
I am sorry this video is so dark.
I took it Christmas Eve after mom and dad
had left. Shane had fallen asleep on
the couch and I was about to do Madison's
breathing treatment. She started laughing at a
face I was making for her. Love that girl!
I hope everyone had a Merry Christmas. I can not say thank you enough for the prayers that many of you lift up for our family daily. I am so thankful for the faith I have in knowing that God hears all of our cries but it will be His will that is going to be done. Love you all!
Thursday, December 23, 2010
Day 63
Madison has been the sweetest thing today. I went to bed last night with a horrible headache. I didn't take any medicine for it because I kept thinking it was going to go away. I tossed and turned all night. Since Madison sleeps between us and literally, right beside me, she tossed and turned all night as well.
I finally got up at 6:30 this morning and took some medicine. I went back to bed and Madison and I didn't wake up until 10:45. I still had my headache so dad came up to the house with lunch for us and watched Madison so I could rest some. We have been bums all day today. Thank goodness I finally starting feeling better late this afternoon.
I wanted to post this video of Madison that I recorded after I gave her a bath tonight. She is starting to get camera shy and wasn't laughing near as hard as she was when I was singing to her without the camera. I still managed to get a few good laughs. I hope you enjoy it.
I finally got up at 6:30 this morning and took some medicine. I went back to bed and Madison and I didn't wake up until 10:45. I still had my headache so dad came up to the house with lunch for us and watched Madison so I could rest some. We have been bums all day today. Thank goodness I finally starting feeling better late this afternoon.
I wanted to post this video of Madison that I recorded after I gave her a bath tonight. She is starting to get camera shy and wasn't laughing near as hard as she was when I was singing to her without the camera. I still managed to get a few good laughs. I hope you enjoy it.
Wednesday, December 22, 2010
Day 62
Once again, I am sorry that I haven't posted in a few days. Amy and Paul both flew in on Thursday. We have been very busy spending a few days with them. They were only here for 4 days and we had a bunch of stuff to squeeze in to such a short period of time.
It was so great to see how much Amy's little baby bump had grown. She is glowing! I do believe she is the cutest pregnant women I have ever seen. Madison and I took her to the airport yesterday and once again it was very hard. It is getting harder and harder as her pregnancy furthers. We are looking forward to the beginning of February when Amy comes back and will be here for an entire week.
Madison had such a wonderful time Amy and Paul. She felt the need to entertain them the entire time. I have so many pictures I want to upload but our computer has a virus on it and I can't find my camera cord for the laptop. Once I locate it I will be uploading some pictures and videos.
Hopefully I am back to my routine of posting everyday. Madison is doing very well. We have kept her in so much this winter and I do believe that has made a difference. I am praying that this will be our first Christmas and New Year's since she was born that she hasn't been in the hospital.
Dad watched her for me this morning so I could do my Christmas shopping for her. I went to Toys R Us and had a major melt down in the store! Madison is 3 and is just starting to get to the point where she is limited to the toys that she can play with. She is playing with toys that range for 0-24 months. Above 24 months you start getting a lot more toys that she can't play with because of her limitations. I feel like she has all the toys that we can get for her that she can actually use. It was frustrating because it just made me aware of her disability. Yes, we are aware of her disability but we overlook it everyday and don't even notice it anymore. Today, I felt like it was just being rubbed in my face on every aisles I went down. I got in the car and let it out. Madison isn't aware of her limitations and I don't ever want her to be. I will do whatever I have to, to make sure that Madison is happy. Luckily, she doesn't have to have toys for me to accomplish that.
It was so great to see how much Amy's little baby bump had grown. She is glowing! I do believe she is the cutest pregnant women I have ever seen. Madison and I took her to the airport yesterday and once again it was very hard. It is getting harder and harder as her pregnancy furthers. We are looking forward to the beginning of February when Amy comes back and will be here for an entire week.
Madison had such a wonderful time Amy and Paul. She felt the need to entertain them the entire time. I have so many pictures I want to upload but our computer has a virus on it and I can't find my camera cord for the laptop. Once I locate it I will be uploading some pictures and videos.
Hopefully I am back to my routine of posting everyday. Madison is doing very well. We have kept her in so much this winter and I do believe that has made a difference. I am praying that this will be our first Christmas and New Year's since she was born that she hasn't been in the hospital.
Dad watched her for me this morning so I could do my Christmas shopping for her. I went to Toys R Us and had a major melt down in the store! Madison is 3 and is just starting to get to the point where she is limited to the toys that she can play with. She is playing with toys that range for 0-24 months. Above 24 months you start getting a lot more toys that she can't play with because of her limitations. I feel like she has all the toys that we can get for her that she can actually use. It was frustrating because it just made me aware of her disability. Yes, we are aware of her disability but we overlook it everyday and don't even notice it anymore. Today, I felt like it was just being rubbed in my face on every aisles I went down. I got in the car and let it out. Madison isn't aware of her limitations and I don't ever want her to be. I will do whatever I have to, to make sure that Madison is happy. Luckily, she doesn't have to have toys for me to accomplish that.
Thursday, December 16, 2010
Day 61
Madison was so excited today that she was able to get out of the house. Finally, the weather wasn't so cold. We took complete advantage of it and went to MiMi and PaPa's house. We stayed over there for about two hours and Madison had a blast!!
We are all starting to get really excited because Amy and Paul will be here with us tonight. Madison keeps walking around the house saying "Paul." Then I will ask her if she can say Amy, which she can by the way, but she still says "Paul." Too cute.
I didn't get a picture of her today but I did want to post some of my favorite pictures of her and her daddy. Ignore the dates on the pictures though. I forget to change it.
We are all starting to get really excited because Amy and Paul will be here with us tonight. Madison keeps walking around the house saying "Paul." Then I will ask her if she can say Amy, which she can by the way, but she still says "Paul." Too cute.
I didn't get a picture of her today but I did want to post some of my favorite pictures of her and her daddy. Ignore the dates on the pictures though. I forget to change it.
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